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Re-Imagining Housing and Support Options for Individuals with I/DD who have High Support Needs

About the Study

 

Based on past Colorado data and anecdotal evidence, there are gaps in provision of support services and residential options for adults with I/DD who have high support needs. Goals of this proposed study include:

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  1. Understand preferences and create several concept plans for residential solutions for those with at least 24/7 support needs.

  2. Present concept plans to service providers and housing professionals for feedback on tools needed to meet demand.

  3. Offer policy recommendations to address barriers and disparities identified.

 

A full report will be published in Fall 2026.

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Who Should Participate?​
  • Self-advocates or their family members who require at least immediate access to 24/7 support daily to live outside the family home due to functional limitations to complete activities of daily living, specialized behavioral support needs, and/or medical complexity.  In Colorado, this may be reflected as a SIS level 5 or higher. 

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  • Service providers who currently serve this population or who would like to support those with high support needs but are unable to due to regulatory or funding constraints.​
     

Steps to Share Your Voice Today​​

​​Watch short presentation including innovative solutions from across the country.

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​​Self-advocates and family caregivers fill out this survey:

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Service providers fill out this form:

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If you are wanting to share more, please register for an upcoming focus group below.

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Share this website with a friend in Colorado via text or on social media who may wish to participate.

Register for Virtual Focus Groups

In order to collect more information in an open forum format, we will be hosting several virtual focus groups for direct feedback. To participate, please watch the presentation and fill out the survey PRIOR to attending.

April 22, 12-1PM
April 23, 12-1PM
Coming Soon

Urban Suburban Includes: Adams, Arapahoe, Boulder, Broomfield, Denver, Douglas, El Paso, Jefferson, Larimer, Mesa, Pueblo, Teller, and Weld Counties.

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Rural & Mountain Town Includes: Alamosa, Baca, Bent, Cheyenne, Clear Creek, Conejos, Costilla, Crowley, Custer, Delta, Dolores, Elbert, Fremont, Garfield, Gilpin, Huerfano, Jackson, Kiowa, Kit Carson, Las Animas, Lincoln, Logan, Mineral, Moffat, Montezuma, Montrose, Morgan, Otero, Park, Phillips, Prowers, Rio BLanco, Rio Grande, Saguache, Sedgwick, Washington, Yuma, Archeuleta, Chaffee, Eagle, Grand, Gunnison, Hinsdale, La Plata, Lake Ouray, Pitkin, Routt, San Juan, San Miguel, and Summit Counties

Self-Advocates Include: Adult with I/DD who has at least 24-7 support needs and ability to share their voice (spellers or those who use communication devices welcome).

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Please contact Desiree@NeuroInclusiveHousingSolutions.com for self-advoacte focus group participation.

The study is led by Desiree Kameka Galloway of Neuro-Inclusive Housing Solutions with the help of the Inclusive Housing Coalition and the Autism Housing Network. 

 

A big thank you to the Colorado Developmental Disabilities Council for funding this important study.

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The Colorado Developmental Disabilities Council is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) Grant No. 2401COSCDD totaling $1,178,610.00, 100% from federal funding. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, ACL/HHS, or the U.S. Government.

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